Your Daily Dose


Welcome to my journal! This is the place where you'll get your Daily Doses of Dylin (8), A New Language called Jordyn (11) and the Mind Blowing Conversations with Tyler (12)!


Disclosure: YOU NEVER KNOW WHAT YOU'RE GOING TO READ!! Oh and my grammar stinks, but I don't really care. :)


Friday, May 27, 2011

My little man


I'm very limited these days on what I am ALLOWED to post about Tyler. We'll stick with baseball.

love this shot.....


My little Kickers

We had a great season. Jordyn is up to 7 goals and Dylin 4!






 Jordyn is so pretty, even when she should look sweaty & gross.
 Dylin not only scored her first goal ever, but she scored two that game!


A Reason to Celebrate

Dylin was born with Polycystic Kidney Disease. She has been the miracle child, unaffected by this horrible disease so far. But 2 years ago this month, Dylin became very ill. We thought it must have been from her kidneys, but it wasn't. We were now looking into what could be an entire new disease, in her blood! Dylin spent 3 months in and out of the hospital and saw countless doctors. After numerous tests and 5 specialists that could not agree on her diagnosis.... I took matters in my own hands! It was midnight on a Friday night and I searched on UCLA's website for the pediatric hematology group. As I looked over pages of doctors’ names, I prayed I'd know which one to email and hopefully grab their attention. As any mother would, I chose the lead Chief of Staff for the Hematology group. I wasn't playing around! I sent a brief email and attached Dylin's numerous lab & radiology reports. TEN hours later, we received a call from UCLA asking if we could be there Monday morning. They had never seen a PT/PTT (blood clotting ratio) count so high before in a child. I thought my heart was going to stop. You never want to hear news like that from a world renowned medical center. Dylin and I flew there on Monday morning and after 12 vials of blood drawn, we had a meeting with 5 members from the hematology group, including the head doctor I emailed. Dylin was diagnosed in 24 hours. She has a lupus variable in her blood that makes it hard for her blood to clot. It affects her liver, which was the first sign we had that there was something wrong. As much as you don't want to hear Lupus or that she now has two incurable diseases, it was a relief to have answers. The good news that was presented, but not promised because Dylin was so young, was that UCLA had seen children grow out of it as their blood "got older." For the past two years, we've watched carefully of accidents and tested her blood every 3-6 months. Last week, Dylin saw the hematology group in Vegas to check her blood count. We've been told that if we didn't see the numbers lowering by the time she was around 6 and 7 years old, the disease would probably not go away. Last night, I received a quiet phone call from Dylin's doctor. When I heard a crackling voice on the other end, my heart sank. His voice was crackling because he was choked up with joy to tell me Dylin's numbers didn't just decrease but that they stabilized to where they should be; just like any other child!


We still have a long tough road ahead with Dylin's kidney disease but as for today, we are celebrating that our little Rock Star's battle for life has paid off!!

In honor of Dylin’s amazing news, our good friends at Golden Spoon would like to host a “Dylin Night.” A portion of all sales on THIS Thursday, March 24th, at the Eastern/Sienna Heights location will be donated to The Dylin Cenname Medical Fund. As of today our family has raised & donated over $125,000.00 in funds for research, to find a cure for PKD.

Dylin & her family will be at Golden Spoon from 5:30-8:30pm. You may also support her by purchasing frozen yogurt anytime during business hours and mention you are there for Dylin!

Thank you for your ongoing love & support!


Dylin's party @ Golden Spoon to celebrate her good news! Thank you to all of our friends who came to support us and thank you to Golden Spoon for your donation!

















Oh Dyllie Dyllie & Syd

Daily Dose of Dylin


School Dances





Monday, May 23, 2011

Show n Tell.... Dylin style

Can't just bring the hampster.... She has to bring his toilet too.

Valentines Day 2011


Every year, the kids wake up to heart pancakes, fruit and gifts.
 Sweetest story.... Tyler and his friends unravelled a baseball. Dylin had collected all the string inside (without any of us seeing) and saved it for Jordyn. She gave it to her Valentines morning and said, "This string is for you to sew with, since I know how much you love to sew." awwwwwe.

 Jordyn had to bring a home made Valentine box. Hello??!!! Did you think we were just going to bring a shoe box? Haha Big Ha. We can't be simple about anything. LOVE THIS!!!




In Training - Lesson 1

I'd be a horrible Mother if I said I just started teaching my kids tid bits of stuff in life they need to know. We're just starting to blog it, that's all.

As much as I want my kids to be with me for the rest of their lives, I don't want them to be. (maybe next door). You hear the Moms that say, "I can't wait till school starts back up." I'm the Mom that says, "I want my kids to stay home with me."
But since they can't, I'm training them to be independent. Along with their friends too. If you're hanging out over here, we may surf down the stairs on boogie boards, but know that you'll be learning how to change the filter on my reverse osmosis too. (I need some other children to be strong individuals too, who will my kids marry?)

We learned how to use self check out at the grocery store.....
(who doesn't love running items over the scanner? I always fight my girls to be the checker when we play store at home.)

Who Does That???

Who buys there grandaughter handcuffs like this for pretend play??
:o) Hahahahaha.
(wasn't my mom)

"It's out of order"

It's 4am.
Dylin's in my bed.
Tyler comes in.
Tyler starts throwing up.
I help him. Get him in bed.
Scoop up Dylin to put her back in her bed.
She yells, "STOP, what are you doing?!!!"
 "Dyl, Tyler is sick, you need to go back in your bed."
 "No way, it's out of order!"
 "Huh?"
"I said, it's out of order!!"
"Like you mean, a mess?"
"No, it's out of order, like you can't use it!"
"Dylin, Tyler is sick, you have to go there!"
I continue to carry her in there.
To find this on her door.

she was serious!
She then of course follows it up with,
"and since you are making it IN ORDER, you are making my bed in the morning!"
WHO IS THIS CONTROVERSIAL AT 4AM!!!!???

Their old Mutha

I walked down stairs on the morning of my birthday, to find posters making SURE I knew I was 33! There was more of those than any of the other cute wishes. Thanks Girls!




from dylin....